I woke up a wilted rose
My petals were crushed
a thousand tempests
My thorns turned inwards
striking my stem
Worms crawled all over me
Yet
my roots were intact
– by Angelina Bong
Malaysia
Tag: fibromyalgia
I drew this while lying down in bed during a ME/CFS relapse and Fibromyalgia flare-up that has seen me housebound and sometimes bedridden. It describes the location of some of the pain in my body and how sore it feels. The image also embodies my sense of feeling trapped as a result of my disability, and of having my potential and freedom thwarted. I had the feather to hand because my husband brings me items from outside: The use of a found object is symbolic of my being housebound and detached from the natural world. It also represents a disconnect from the life I’d rather be leading if I were well enough. The image is visceral and disturbing, and it reflects the distressing and very physical symptoms I can experience.
- by Paula Knight
Paula Knight’s site ‘Chronic Creations’
Twitter: @Paula_JKnight
Instagram: @paukajkstudio
UK
you sit in my throat like a stone in shoe
eyes dry as bone. bones hurt.
why cry?
these days that feel different but all so same.
little belly wrenches all the time as though to be freed from something
tonsils i should rip them from my neck. daft neck
neck forever stiff
but why should neck feel at ease when i remain so needlessly static
lose my reasons every day
and think of new
you div
ask yourself what time it is. what day
become like a teddy bear.
apples hurt my mouth but i still eat them.
how life is unfair.
why must i scratch my skin?
not fair on you
to have everything
daffodils. i used to kick their heads off. weak.
it follows me round everywhere.
what’s the point in being alive when you’re dead
how can you sleep when you’re wet
wet
- by Blair James
United Kingdom
- by Nicole Brown
